The one with all the C’s

I remember years ago hearing about how we should stay away from words that start with the letter “C” ie cookies, candy, chips, caffeine, cigarettes, etc. I have to laugh about all the “C” words I have floating around now Corona, cancer, chemo, CT scans, canceled school, closures. Its a shame the world doesn't spell quarantine like I think it should be spelled......With a C!

C is for Corona and Closed The whole world is dealing with corona and all its implications, so I am trying to keep that in perspective but damn, its hard to deal with when you are hotel living. MN governor has implicated the stay at home order which has almost instantly closed even more restaurants leaving three in walking distance that are now offering limited hours with and an abbreviated carry out menu. Luckily we were able to leave our standard hotel and “moved into” more of an apartment style hotel so now we have a kitchen to make meals. The hospitals attached to Mayo are not allowing any visitors and the climic at this point only allows one visitor per patient. Hoping it stays that way for a little longer. Ive never had chemo before but I understand its not fun to go through let alone without having someone with you.

C is for Cancer, Chemo, CT scans We are scheduled for chemo education on Monday as well as more labs! Tuesday starts round 1A followed by rounds 1B and 1C Wednesday and Thursday.
So here is the problem with closures when you have cancer and need chemo..... who is going to shave my head?💇🏻‍♀️ I mean I really think that hair dressers should be considered essential personal. And then all the stores to get some kind of hair cover will be closed....... Real World Problem people! Lol.... Ok ok so maybe i can do some comb over thing and look like President Trump. 😜

On Tuesday I went for radiation stimulation appointment. Still waiting on approval for proton radiation but while we wait my rad doc, Dr Oliver, wanted to move along to minimize delays. It was interesting for sure. Stimulation before radiation is used to find exact position I will be in during treatments. They use a CT scan to identify where radiation beams will sent. Tattoos (like legit permanent ink) injected in three spots.....don’t get to excited theses tats are hardly noticeable.  They use a Vac Loc bag to mold a pillow to where my arms will be placed during administration. Now that all the physical prep for radiation is done my team meets and plans out treatment. Its way to freaking technical to even try and put in words. (I wish I could just insert my recorded conversations during apts with everyone).  Right now I am scheduled for radiation to start April 6.. Oh that reminds me..... my appointments can be given anytime between 7am and 12am! Lord have mercy, Because I lack seniority I dont get first dibs on appointment slots. Also because of how high tech the machines are (the delivery system takes up three stories ) only 4 people can receive treatment at a time.  (Here is a link for any nerds like myself that want to see a video about how Mayo does the Proton pencil beam https://www.mayoclinic.org/departments-centers/proton-beam-therapy-program/home/orc-20185488)

Wednesday was moving day into our new “home” the Broadway Plaza. Its super nice to have more space then a conventional hotel room. We have two bedrooms so Eric can keep working and now that he has a cold he sleeps in another room. Like I said before this place also has a kitchen so we actually have a place to sit and eat. With everything restricted or closed there hasn't been anywhere to even eat our carry out except in bed! So the space is nice. Just wish D and Rylie could be here too. Also on Wednesday I got fitted for my vent mask. Today is rest day and a day to read up on all the folders of info I received on Monday.

C is for Canceled school Its so sad to think about all the teachers and students who have to adapt to the new temp normal of distant learning. I feel so bad for HS students who are trying to make the grades for upcoming college applications, seniors who cant spend there last few months with friends and athletes who may never get a chance to play their beloved sport again. Its such a bizarre time. I do not even know how my kids are learning- Ive had to hand that over to them to figure out on their own and with the guidance of my parents.  Thank God my mom still has some teacher left in her bones! Rylie applied for a Philly field trip for Science and was accepted and thats been canceled too. But like everything else and all the other “C”s...... there is a reason this is all happening and just as I said in the beginning of my blog “Want to hear God laugh tell him your plan”!

Luckily I measured as a Medium plus and was able to get a mask with a little design! 

* comments posted using Safari do not come through! I know many have reached out saying they commented but wasn't seeing it! If you use chrome or Bing it will post. And since I am so bored and have nothing to do I fully expect everyone to reread every post and comment again JK!